A Comprehensive Model for Understanding the Emotional Strain on Caregivers of Children with Cancer in Malaysia

Nurul Hasyimah Mat Rani; Nur Shuhana Mohd Sansuddin; Mazita Ahmad; Norsayyidatina Che Rozubi

doi:10.21834/e-bpj.v10iSI37.7628

Authors

Nurul Hasyimah Mat Rani Department of Guidance & Counselling, Faculty of Human Development, Sultan Idris Education University, Perak, Malaysia
Nur Shuhana Mohd Sansuddin Department of Guidance & Counselling, Faculty of Human Development, Sultan Idris Education University, Perak, Malaysia
Mazita Ahmad Department of Guidance & Counselling, Faculty of Human Development, Sultan Idris Education University, Perak, Malaysia
Norsayyidatina Che Rozubi Department of Guidance & Counselling, Faculty of Human Development, Sultan Idris Education University, Perak, Malaysia

DOI:

https://doi.org/10.21834/e-bpj.v10iSI37.7628

Keywords:

Counselling, Emotional challenges, Caregivers, Pediatric Cancer

Abstract

Parents of children with cancer face significant emotional challenges that impact their well-being. This study examines the emotional difficulties experienced by parents during their child's cancer treatment using a Design and Development Research approach. Semi-structured interviews with nine parents identified 44 emotional factors which were systematically refined into a final model consisting of 28 components through expert review by Interpretive Structural Modelling and the Fuzzy Delphi Method. The findings highlight the need for structured emotional support, counseling interventions and effective communication from healthcare providers. The study provides an evidence-based framework for psychosocial support services in pediatric oncology setting.

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