OSTOMY SELF-MANAGEMENT EXPERIENCES OF PEOPLE WITH AN OSTOMY: A SCOPING REVIEW
Keywords:
ostomy care, self-management, experiences, people with an ostomyAbstract
This scoping review examines ostomy self-care as a multidimensional concept encompassing physical, psychological, social, and spiritual aspects, but lacking a consistent framework. Key facilitators include family support, culturally sensitive education, telehealth, and spiritual care, while barriers involve body image concerns, stigma, physical complications, and limited specialized care access. The review highlights inconsistent terminology and classification, emphasizing the need for standardized definitions and assessment tools. Holistic, individualized care strategies that address all dimensions of self-care are essential. Future research should focus on standardization and long-term support to enhance independence and quality of life for people living with an ostomy
References
Alenezi, A. (2022). Cultural perceptions and stigma in ostomy care. Journal of Health Sociology, 34(2), 145–160.
Annells, M. (2006). The experience of living with a stoma. Journal of Advanced Nursing, 55(5), 478–486.
Byfield, D. (2020). Peer support and emotional recovery in ostomy patients. Health & Social Care in the Community, 28(3), 456–463.
Ceylan, H. (2017). Exploring body image and adaptation in ostomy patients: A phenomenological study. Journal of Clinical Nursing, 26(3–4), 456–464.
Fahrizal, A., et al. (2025). Managing physical complications in ostomy care: A qualitative study. Journal of Wound Care, 34(2), 112–120.
Hu, L., et al. (2024). Discharge planning and ostomy education: A mixed-methods study. Nursing Practice Today, 14(1), 33–41.
King, I. M. (1981). A theory for nursing: Systems, concepts, process. John Wiley & Sons.
Li, Y., Zhang, L., & Chen, H. (2024). Health literacy and ostomy care in rural populations: A cross-sectional study. International Journal of Nursing Studies, 132, 104345.
Lim, J., et al. (2015). Body image and psychological adjustment in ostomy patients. Asian Journal of Nursing, 22(4), 215–222.
Liu, X. (2023). Psychological adjustment and coping strategies among Chinese ostomy patients: A qualitative study. BMC Nursing, 22(1), 78.
Lockwood, C., Munn, Z., & Porritt, K. (2020). Qualitative research synthesis: Methodological guidance for systematic reviewers utilizing meta-aggregation. JBI Evidence Synthesis, 18(10), 2103–2112.
Mohr, S. (2016). Adolescents with ostomies: Identity and intimacy challenges. Journal of Pediatric Nursing, 31(6), 620–626.
Mørkhagen, H. (2023). Dating and stigma among young women with ostomies. Scandinavian Journal of Caring Sciences, 37(1), 89–97.
Peters, M. D. J., Godfrey, C. M., McInerney, P., Munn, Z., Tricco, A. C., & Khalil, H. (2020). Chapter 11: Scoping reviews. In E. Aromataris & Z. Munn (Eds.), JBI Manual for Evidence Synthesis. https://doi.org/10.46658/JBIMES-20-12
Petersén, C., & Carlsson, E. (2021). Social stigma and isolation in ostomy patients. International Journal of Qualitative Studies on Health and Well-being, 16(1), 192–201.
Sasaki, M., et al. (2021). Health literacy and self-care in older ostomy patients. Geriatric Nursing, 42(3), 145–152.
Silva, R. (2021). Emotional experiences of patients with a new ostomy: A thematic analysis. Nursing Research and Practice, 2021, 1–9.
Soelling, M., et al. (2025). Barriers to ostomy self-care: A qualitative study. Journal of Clinical Nursing, 34(3), 245–256.
Son, H., & Kang, J. (2021). Barriers to ostomy self-care: A qualitative study in South Korea. Asian Nursing Research, 15(2), 89–96.
Stavropoulou, A. (2021). Social support and adaptation in Greek ostomy patients: An ethnographic perspective. Health & Social Care in the Community, 29(5), 1234–1242.
Sun, V., Grant, M., & McMullen, C. (2019). Transitioning to life with an ostomy: A qualitative study of patient experiences. Journal of Wound, Ostomy and Continence Nursing, 46(2), 147–153.
Tan, M. (2022). Psychological resilience in ostomy patients: A phenomenological study. Journal of Mental Health Nursing, 31(2), 134–142.
Tomasi, R., et al. (2022). Coping strategies in ostomy patients: A thematic analysis. Journal of Holistic Nursing, 40(1), 45–56.
Villa, G. (2018). Surgical interventions and quality of life in ostomy patients. Colorectal Disease, 20(6), 512–518.
Vural, F., et al. (2016). Emotional adjustment in patients with permanent ostomies. Journal of Clinical Psychology in Medical Settings, 23(4), 392–401.
Wang, Y. (2024). Community-based support for elderly ostomy patients in China: A mixed-methods study. Geriatric Nursing, 45, 12–19.
Whiteley, J., et al. (2025). Self-care and autonomy in ostomy patients: A longitudinal study. Journal of Patient Experience, 12(1), 78–85.
Wu, Y., Zhang, H., & Chen, L. (2022). Evaluating qualitative research quality: Application of the JBI checklist in nursing studies. International Journal of Nursing Sciences, 9(1), 45–52.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Fatimah Sham, Patimah Abdul Wahab, Luqman Wafi Che Hasnan, Estriana Murni Setiawati
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
