Participation in Daily Activities and Quality of Life among Individuals with Paraplegic Spinal Cord Injury in Pakistan

Faizan Jameel Khanzada; Ahmad Zamir Che Che Daud Che Daud; Mohammad Ghazali Masuri; Mohd Zulkifli Abdul Rahim; Erna Faryza Mohd Poot; Manoj Kumar Ranabhat

doi:10.21834/e-bpj.v8i25.4865

Authors

Faizan Jameel Khanzada Centre for Occupational Therapy Studies, Faculty of Health Sciences, Universiti Teknologi MARA, Malaysia; Sindh Institute of Physical Medicine and Rehabilitation, Department of Occupational Therapy, Govt of Sindh, Pakistan
Ahmad Zamir Che Che Daud Che Daud Occupational Therapy Studies, Faculty of Health Sciences, Universiti Teknologi MARA, Malaysia; Special Population Research, Innovation and Knowledge (SPaRK), Faculty of Health Sciences, Universiti Teknologi MARA, Malaysia
Mohammad Ghazali Masuri Occupational Therapy Studies, Faculty of Health Sciences, Universiti Teknologi MARA, Malaysia
Mohd Zulkifli Abdul Rahim Disability Transformation Unit, School of Health Sciences, Universiti Sains Malaysia, Kubang Kerian, Malaysia
Erna Faryza Mohd Poot Centre for Occupational Therapy Studies, Faculty of Health Sciences, Universiti Teknologi MARA, Malaysia
Manoj Kumar Ranabhat Hamad Medical Corporation, Occupational Therapy Department, Qatar Rehabilitation Institute, Doha, Qatar

DOI:

https://doi.org/10.21834/e-bpj.v8i25.4865

Keywords:

Individual with Paraplegic SCI, Participation, Occupational Therapy, Quality of Life

Abstract

Individuals with paraplegic Spinal Cord Injury (SCI) face various difficulties that limit participation in daily activities and lowered Quality of Life (QOL) after hospital discharge. This cross-sectional study aimed to investigate the level of participation in daily activities and QOL among individuals with paraplegic SCI and to examine the relationship between these two variables. The results revealed that individuals with paraplegic SCI faced significant challenges in social participation, life activities, mobility, getting along, self-care, and cognition, leading to a reduction in overall QOL. Occupational therapists prioritize post-discharge interventions targeting to improve participation and QOL for successful rehabilitation and community reintegration.

References

Alve, Y. A., Bontje, P., & Begum, S. (2019). Endeavoring sustainable participation: post-discharge adaptation process of occupational participation among persons with spinal cord injury in Bangladesh. World Federation of Occupational Therapists Bulletin, 75(2), 112-123. DOI: https://doi.org/10.1080/14473828.2019.1647983

Akyurek, G., & Bumin, G. (2017). Community participation in people with disabilities. Occupational therapy-occupation-focused holistic practice in rehabilitation. Croatia: Intech, 81-107. DOI: https://doi.org/10.5772/intechopen.68470

Arsh, A., Darain, H., Muhammad, D., Khan, M. N., Ilyas, S. M., Zeb, A., & Khalid, S. (2017). Factors responsible for readmissions to a rehabilitation center following spinal cord injury. Cell, 333, 9482238.

Arsh, A., Anwar, Z., Zeb, A., & Ilyas, S. M. (2020). Effectiveness of occupational therapy in improving activities of daily living performance in complete cervical tetraplegic patients; A quasi experimental study. Pakistan journal of medical sciences, 36(2), 96. DOI: https://doi.org/10.12669/pjms.36.2.1002

Ahmad, S., Islam, M., Zada, M., Khattak, A., Ullah, R., Han, H., & Araya-Castillo, L. (2022). The influence of decision making on social inclusion of persons with disabilities: a case study of Khyber Pakhtunkhwa. International Journal of Environmental Research and Public Health, 19(2), 858. DOI: https://doi.org/10.3390/ijerph19020858

Ahmed, N., Quadir, M. M., Rahman, M. A., & Alamgir, H. (2018). Community integration and life satisfaction among individuals with spinal cord injury living in the community after receiving institutional care in Bangladesh. Disability and Rehabilitation, 40(9), 1033-1040. DOI: https://doi.org/10.1080/09638288.2017.1283713

Alizadeh Zarei, M., Mohammadi, A., Mehraban, A. H., Ansari Damavandi, S., & Amini, M. (2017). Participation in daily life activities among children with cancer. Middle East Journal of Cancer, 8(4), 213-222.

Boop, C., Cahill, S. M., Davis, C., Dorsey, J., Gibbs, V., Herr, B. & Lieberman, D. (2020). Occupational therapy practice framework: Domain and process fourth edition. AJOT: American Journal of Occupational Therapy, 74(S2), 1-85. DOI: https://doi.org/10.5014/ajot.2020.74S2001

Barclay, L., McDonald, R., & Lentin, P. (2015). Social and community participation following spinal cord injury: a critical review. International Journal of Rehabilitation Research, 38(1), 1-19. DOI: https://doi.org/10.1097/MRR.0000000000000085

Bangash, S. U., & Muhammad, H. (2023). Exploring Emotional, Problem Focus and Dysfunctional Coping Strategies and Life Satisfaction among Married and Unmarried Spinal Cord Injury Patients. Annals of Human and Social Sciences, 4(2), 59-70. DOI: https://doi.org/10.35484/ahss.2023(4-II)07

Creswell, J. W., & Creswell, J. D. (2022). Research design: Qualitative, quantitative, and mixed methods approaches (6th ed.).SAGE Publications.

Darain, H., Ilyas, S. M., Zeb, A., Ullah, I., & Muhammad, D. (2017). Epidemiology of spinal cord injury in Pakistan: a retrospective study. Physikalische Medizin, Rehabilitationsmedizin, Kurortmedizin, 27(02), 106-109. DOI: https://doi.org/10.1055/s-0042-124356

Daud, A. Z. C., Judd, J., Yau, M., & Barnett, F. (2016). Issue in applying occupation-based intervention in clinical practice: a Delphi study. Procedia-Social and behavioral sciences, 222, 272-282. DOI: https://doi.org/10.1016/j.sbspro.2016.05.158

Etikan, I. (2016). Comparison of Convenience Sampling and Purposive Sampling. American Journal of Theoretical and Applied Statistics, 5(1). DOI: https://doi.org/10.11648/j.ajtas.20160501.11

Fekete, C., Siegrist, J., Post, M. W., & Brinkhof, M. W. (2019). Productive activities, mental health and quality of life in disability: exploring the role enhancement and the role strain hypotheses. BMC Psychology, 7, 1-13. DOI: https://doi.org/10.1186/s40359-018-0276-6

Halvorsen, A., Kristine, P. A. P. E., Marcel, W. M., Biering-Sørensen, F., Mikalsen, S., Hansen, A. N., & Steinsbekk, A. (2021). Participation and quality of life in persons living with spinal cord injury in Norway. Journal of Rehabilitation Medicine, 53(7). DOI: https://doi.org/10.2340/16501977-2858

Huang, W. C., Wu, T. F., Liao, H. F., Liou, T. H., & Kang, Y. W. (2016). The relationship of participation restriction to quality of life in individuals with spinal cord injury. Phy Med Rehabil Int, 3(5), 1099.

Hair, J. F., Page, M., & Brunsveld, N. (2020). Essentials of business research methods (4th ed.).Routledge DOI: https://doi.org/10.4324/9780429203374

Irfan, M., Sethi, M. R., Khan, I., Awan, N. R., Naz, F., Saleem, U., & Naeem, F. (2017). TRANSLATION AND VALIDATION IN PASHTO (3): WORLD HEALTH ORGANIZATION DISABILITY ASSESSMENT SCHEDULE 2.0. Journal of Postgraduate Medical Institute, 31(4).

Islam, M. S., Jahan, H., Hossain, M. S., & Patwary, M. F. K. (2016). Quality of life among persons with paraplegic spinal cord injury. Disability, CBR & Inclusive Development, 27(3), 102-117. DOI: https://doi.org/10.5463/dcid.v27i3.477

Lodhi, F. S., Raza, O., Montazeri, A., Nedjat, S., Yaseri, M., & Holakouie-Naieni, K. (2017). Psychometric properties of the Urdu version of the World Health Organization's quality of life questionnaire (WHOQOL-BREF). Medical Journal of the Islamic Republic of Iran, 31, 129. DOI: https://doi.org/10.14196/mjiri.31.129

Kesmodel, U. S. (2018). Cross-sectional studies – what are they good for? Acta Obstetricia et Gynecologica Scandinavica, 97(4), 388–393. DOI: https://doi.org/10.1111/aogs.13331

Khan, D. Q.F., Bilal, H. D., Khan, M.S. D., Ahmad, N.D., Jaffar, M. D., Ayaz, D. M., & Khalid, S. D. (2018). The Prevalence of Traumatic Spinal Cord Injury in Khyber Pakhtunkhwa from 2008 to 2017: A Cross-Sectional Study. International Journal of Scientific & Engineering Research, 9(10), 776.

Kashif, M., Jones, S., Haider Darain, H. I., Raqib, A., & Butt, A. A. (2019). Factors influencing the community integration of patients following traumatic spinal cord injury: a systematic review. JPMA, 69(1336).

Mat Rosly, M., Halaki, M., Hasnan, N., Mat Rosly, H., Davis, G. M., & Husain, R. (2018). Leisure time physical activity participation in individuals with spinal cord injury in Malaysia: barriers to exercise. Spinal cord, 56(8), 806-818. DOI: https://doi.org/10.1038/s41393-018-0068-0

Ripat, J. D., & Woodgate, R. L. (2012). Self-perceived participation among adults with spinal cord injury: a grounded theory study. Spinal cord, 50(12), 908-914. DOI: https://doi.org/10.1038/sc.2012.77

Rahman, E., Bardhan, N., Curtin, M., Islam, M. S., Patwary, M. F. K., & Kumar Das, S. (2023). An assessment of disability and quality of life in people with spinal cord injury upon discharge from a Bangladesh rehabilitation unit. Spinal Cord, 61(1), 37-42. DOI: https://doi.org/10.1038/s41393-022-00852-4

Sajid, M. I., Ahmad, B., Mahmood, S. D., & Darbar, A. (2020). Gunshot injury to spine: an institutional experience of management and complications from a developing country. Chinese Journal of traumatology, 23(6), 324-328. DOI: https://doi.org/10.1016/j.cjtee.2020.07.005

Serres-Lafontaine, A. D., Labbé, D., Batcho, C. S., Norris, L., & Best, K. L. (2023). Social participation of individuals with spinal injury using wheelchairs in rural Tanzania after peer training and entrepreneurial skills training. African journal of disability, 12, 975. DOI: https://doi.org/10.4102/ajod.v12i0.975

Wolf, T. J., & Baum, C. M. (2015). Improving participation and quality of life through occupation. Stroke rehabilitation, 46-58. DOI: https://doi.org/10.1016/B978-0-323-17281-3.00002-2

Yasmin, R., Kousar, S., Sultana, S., Noor, N., Amin, J., & Abbasi, S. I. (2023). Assessment of Stress Level and Quality of Life in Spinal Cord Injury Patients. Pakistan Journal of Medical & Health Sciences, 17(05), 107-107. DOI: https://doi.org/10.53350/pjmhs2023175107