Advancing Quality of Life through Thalassaemia Awareness with THALEA

Maisarah Noor Anwar; Nik Nairan Abdullah; Dalila Roslan; Aimi Nadira Mat Ruzlin; Marisa Syavitri Dilaga

doi:10.21834/e-bpj.v10i34.7339

Authors

Maisarah Noor Anwar Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Sungai Buloh Campus, Jalan Hospital, 47000 Sungai Buloh, Malaysia
Nik Nairan Abdullah Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Sungai Buloh Campus, Jalan Hospital, 47000 Sungai Buloh, Malaysia
Dalila Roslan Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Sungai Buloh Campus, Jalan Hospital, 47000 Sungai Buloh, Malaysia
Aimi Nadira Mat Ruzlin Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Sungai Buloh Campus, Jalan Hospital, 47000 Sungai Buloh, Malaysia
Marisa Syavitri Dilaga Public Health Department, Faculty of Medicine and Health Science, Mataram University, Indonesia

DOI:

https://doi.org/10.21834/e-bpj.v10i34.7339

Keywords:

Thalassemia diagnosis, Premarital counselling, Health education, Thalassaemia prevention and control

Abstract

Thalassaemia is a severe hereditary disease, but most carriers are unaware of their risk, increasing the chance of having children with thalassaemia major. Premarital screening is important, but awareness among youths remains low. To address this, we developed and validated the Thalassaemia Education and Awareness (THALEA) Kit, a theory-based intervention for high school students using the ADDIE framework. THALEA contains nine educational materials and shows strong validity. The S-CVI/Ave was 0.95, and the average S-FVI/Ave was 0.96, indicating excellent agreement and validity across all items. In conclusion, THALEA has the potential to improve thalassaemia knowledge and screening intentions among adolescents.

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