Impact of Digital Health on  Dementia Caregivers’ KAP: A Systematic Review

Nurulizzah Mahfar; Nik Nairan Abdullah; Dalila Roslan; Marisa Syavitri Dilaga

doi:10.21834/e-bpj.v11i36.7789

Authors

Nurulizzah Mahfar Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA Sungai Buloh Campus, Selangor, Malaysia
Nik Nairan Abdullah Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA Sungai Buloh Campus, Selangor, Malaysia
Dalila Roslan Department of Public Health Medicine, Faculty of Medicine, Universiti Teknologi MARA Sungai Buloh Campus, Selangor, Malaysia
Marisa Syavitri Dilaga Public Health Department, Faculty of Medicine and Health Sciences, Mataram University, West Nusa Tenggara, Indonesia

DOI:

https://doi.org/10.21834/e-bpj.v11i36.7789

Keywords:

Dementia, Caregivers, KAP, Systematic Review

Abstract

Informal caregivers of people living with dementia often lack formal training, leading to gaps in knowledge, attitudes, and caregiving practices (KAP). Digital health interventions may help address these gaps. This systematic review, conducted in accordance with PRISMA 2020, searched five major databases up to February 2025 for studies assessing at least one KAP outcome. Study quality was appraised using the EPHPP tool. Seven studies met the inclusion criteria. Digital interventions generally improved caregiver knowledge and attitudes, while effects on practice were less consistent. Overall study quality was moderate. Digital interventions are promising, but more rigorous research is needed.

References

Andrade C, Menon V, Ameen S, Kumar Praharaj S. Designing and conducting knowledge, attitude, and practice surveys in psychiatry: practical guidance. Indian journal of psychological medicine. 2020;42(5):478-81. DOI: https://doi.org/10.1177/0253717620946111

Ashida S, Beachy TR, Killian E, Pinho H, Donohoe M, Schneider H, Marchini L. An app to support oral hygiene care: increasing attitudes, knowledge, and confidence in identifying oral health problems among caregivers of persons living with dementia. Spec Care Dentist. 2024;44(4):1146-54. DOI: https://doi.org/10.1111/scd.12961

Bosco C, Otenen E, Osorio Torres J, Nguyen V, Chheda D, Peng X, et al. Designing a multimodal and culturally relevant Alzheimer disease and related dementia generative artificial intelligence tool for Black American informal caregivers: cognitive walk-through usability study. JMIR Aging. 2025;8:e60566. DOI: https://doi.org/10.2196/60566

de-Moraes-Ribeiro FE, Moreno-Cámara S, da-Silva-Domingues H, Palomino-Moral PÁ, del-Pino-Casado R. Effectiveness of internet-based or mobile app interventions for family caregivers of older adults with dementia: a systematic review. Healthcare (Basel). 2024;12(1):xx. DOI: https://doi.org/10.3390/healthcare12151494

Fernandez Cajavilca M, Zheng A, Bamidele-Sanni K, Sadarangani T. Exploring family caregivers’ likelihood of adopting a novel app that connects care teams of persons living with dementia: a mixed-methods study. Gerontol Geriatr Med. 2024;10:23337214241275638. DOI: https://doi.org/10.1177/23337214241275638

Ferrero-Sereno P, Mendoza-Muñoz M, Palomo-López P, Carlos-Vivas J, Luna-Castaño P, Caballero-De la Calle R, et al. A systematic review of the effectiveness of technological interventions for caregivers of people with dementia: effects on quality of life and psychoemotional variables. Front Public Health. 2025;13:1579239. DOI: https://doi.org/10.3389/fpubh.2025.1579239

Guilin L, Qingran L, Ruiying H, Cuiqiu Z, Yunjia L. An investigation of the knowledge, attitude and practice of family caregivers of patients with Alzheimer’s disease. Int J Psychol Brain Sci. 2019;4(1):1-6. DOI: https://doi.org/10.11648/j.ijpbs.20190401.11

Hattink B, Meiland F, van der Roest H, Kevern P, Abiuso F, Bengtsson J, et al. Web-based STAR E-learning course increases empathy and understanding in dementia caregivers: results from a randomized controlled trial in the Netherlands and the United Kingdom. J Med Internet Res. 2015;17(10):e241. DOI: https://doi.org/10.2196/jmir.4025

Kagwa AS, Dorell Å, Konradsen H, Vikström S, Kabir ZN. Providing and receiving support through a tailor-made mobile app: a qualitative study on experience of professionals and family caregivers to persons with dementia. BMC Geriatr. 2024;24(1):554. DOI: https://doi.org/10.1186/s12877-024-05151-6

Leng M, Zhao Y, Xiao H, Li C, Wang Z. Internet-based supportive interventions for family caregivers of people with dementia: systematic review and meta-analysis. J Med Internet Res. 2020;22(9):e19468. DOI: https://doi.org/10.2196/19468

Lewis ML, Hobday JV, Hepburn KW. Internet-based program for dementia caregivers. Am J Alzheimers Dis Other Demen. 2010;25(8):674-9. DOI: https://doi.org/10.1177/1533317510385812

Loh KJ, Ng ALO, Chia YC, Lee WL, Mohan D, Renganathan E. Caring for people living with dementia and their informal caregivers: current perspectives in Malaysia. Malays Fam Physician. 2024;19:69. DOI: https://doi.org/10.51866/cm.674

Noel MA, Lackey E, Labi V, Bouldin ED. Efficacy of a virtual education program for family caregivers of persons living with dementia. J Alzheimers Dis. 2022;86(4):1667-78. DOI: https://doi.org/10.3233/JAD-215359

Rodriguez K, Fugard M, Amini S, Smith G, Marasco D, Shatzer J, et al. Caregiver response to an online dementia and caregiver wellness education platform. J Alzheimers Dis Rep. 2021;5(1):433-42. DOI: https://doi.org/10.3233/ADR-200292

Salehinejad S, Jannati N, Azami M, Mirzaee M, Bahaadinbeigy K. A web-based information intervention for family caregivers of patients with dementia: a randomized controlled trial. J Inf Sci. 2024;50(1):104-15. DOI: https://doi.org/10.1177/01655515221081353

Samari E, Yuan Q, Zhang Y, Jeyagurunathan A, Subramaniam M. Barriers to using eHealth/mHealth platforms and perceived beneficial eHealth/mHealth platform features among informal carers of persons living with dementia: a qualitative study. BMC Geriatr. 2024;24(1):30. DOI: https://doi.org/10.1186/s12877-023-04628-0

Schiavo JH. PROSPERO: an international register of systematic review protocols. Med Ref Serv Q. 2019;38(2):171-80. DOI: https://doi.org/10.1080/02763869.2019.1588072

Thomas H, Ciliska D, Micucci S, Wilson-Abra J, Dobbins M. Effective Public Health Practice Project (EPHPP). Hamilton, ON: Effective Public Health Practice Project; 1999.

Turnbull N, Sriruecha C, Kongmant R, Nghiep LK, Tudpor K. A mobile application for enhancing caregiver support and resource management for long-term dependent individuals in rural areas. Healthcare (Basel). 2024;12(1):xx. DOI: https://doi.org/10.3390/healthcare12151473

Wang AH, Newman K, Martin LS, Lapum J. Beyond instrumental support: mobile application use by family caregivers of persons living with dementia. Dementia (London). 2022;21(5):1488-510. DOI: https://doi.org/10.1177/14713012211073440

World Health Organization. Global action plan on the public health response to dementia 2017–2025. Geneva: WHO; 2017.

Yu Y, Xiao L, Ullah S, Meyer C, Wang J, Pot AM, He JJ. The effectiveness of internet-based psychoeducation programs for caregivers of people living with dementia: a systematic review and meta-analysis. Aging Ment Health. 2023;27(10):1895-911. DOI: https://doi.org/10.1080/13607863.2023.2190082

Zou N, Xie B, He D, Hilsabeck R, Aguirre A. mHealth apps for dementia caregivers: systematic examination of mobile apps. JMIR Aging. 2024;7:e58517. DOI: https://doi.org/10.2196/58517